2022 – Jackson Levine

Jackson stays super busy enjoying many different interests like playing Lego, sit skiing, and playing sled hockey. He also loves swimming and riding his 4 wheeler. When he grows up, Jackson wants to be a teacher!

Jackson’s diagnosis is Multiminicore Myopathy, Titin Myopathy which is rare, even among rare diseases. He was diagnosed at age 5 and has overcome a lot. He is determined and pushes himself to always achieve more.

Jackson says MDA has opened doors to new activities and friendships, including a great network of support from other families.